Information about the emotional, physical and social challenges of living with acromegaly
View the resources listed here to find more information about acromegaly, including reading answers to some frequently asked questions by others living with acromegaly.
You can also suggest a question if there is something you feel is missing and would help others to read, and find a list of patient support groups for people with acromegaly and other pituitary disorders.
If your doctor suspects that you have acromegaly, he or she will refer you to an endocrinologist for further testing.
Within this section you can learn about the different tests that may be used to confirm a diagnosis of acromegaly and used to monitor your condition in the long term.
Remember to talk with a healthcare professional, such as your doctor or nurse, if you have any concerns about your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice.
When you are diagnosed with acromegaly, be reassured that your condition is not an emergency threat to your health. It may take several weeks before you may see an endocrinologist and have a management plan in place. The management of your condition needs to be considered carefully and it is normal for this to take a number of weeks to co-ordinate.
Do you have any practical tips that you think other people living with acromegaly might benefit from? If so, please send us your tips via this form. Once submitted your suggestion will be reviewed by our expert advisors and considered for inclusion when this site is next updated.
Thank you for taking the time to share your tip, we will evaluate it and it may be added to this website in the future.
Links to sites outside of this website are provided as a resource to the viewer. Ipsen accepts no responsibility for the content of linked sites.
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website supported by Thrivase Pty Ltd.
SOM-AU-000711. Last reviewed: November 2023
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