This website is intended for an Australian and New Zealand audience who are interested in acromegaly
This website is intended for an Australian and New Zealand audience who are interested in acromegaly

How does having acromegaly make you feel?

People with acromegaly have said that it makes them feel old before their time, very low or depressed, alone or isolated, frustrated and embarrassed.

Having a confirmed diagnosis of acromegaly and knowing there is treatment available often provides hope and relief. Talking with your family and friends about your diagnosis or how you are feeling may also help improve low mood. Making others aware of your condition and how it affects you is an important part of your journey and living with acromegaly.

See the Practical Tips section for advice on how to improve low mood.

What if I get worried or concerned?

If you have any concerns or worries let someone know. Among your family, your friends, a Patient Group, your nurse, your hospital doctor or your general practitioner there will be someone there to help and support you. All you need to do is ask.

Make the most of your visits with your doctor. The more you understand about your condition, the more in control you will feel. Take a list of the questions you have to your next hospital appointment and make notes of the answers.

Or take a partner, other family member or friend with you so that they can remind you about the questions you need to ask.

They will also help you to remember comments from the doctor and nurse after your visit.

See the Talking to your doctor about acromegaly section for a list of questions you could take with you to your visits.

Talking to others can help

Richard gives advice on talking to other people about acromegaly

01:08

How much or how little you tell your family members or friends about your current health is up to you.

Do not feel the need to tell everyone until you are ready, but equally do not feel that you have to keep everything to yourself until it becomes an emotional burden or that you have to protect them all the time.

Remember family and friends should be there to support you as much as you are there to support them.

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

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Living with acromegaly

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Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

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Ipsen
Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website design and development by Kanga Health Ltd. Website reference SOM-AU-000710 Last reviewed 7 July 2020 Ipsen Pty Ltd Level 2, Building 4, Brandon Office Park, 540 Springvale Road, Glen Waverley, VIC 3150 Australia Ipsen Pty Ltd, ABN 47 095 036 909.