Talking about acromegaly

How does having acromegaly make you feel?

People with acromegaly have said that it makes them feel old before their time, very low or depressed, alone or isolated, frustrated and embarrassed.

Having a confirmed diagnosis of acromegaly and knowing there is treatment available often provides hope and relief. Talking with your family and friends about your diagnosis or how you are feeling may also help improve low mood. Making others aware of your condition and how it affects you is an important part of your journey and living with acromegaly.

See the Practical Tips section for advice on how to improve low mood.

What if I get worried or concerned?

If you have any concerns or worries let someone know. Among your family, your friends, a Patient Group, your nurse, your hospital doctor or your general practitioner there will be someone there to help and support you. All you need to do is ask.

Make the most of your visits with your doctor. The more you understand about your condition, the more in control you will feel. Take a list of the questions you have to your next hospital appointment and make notes of the answers.

Or take a partner, other family member or friend with you so that they can remind you about the questions you need to ask.

They will also help you to remember comments from the doctor and nurse after your visit.

See the Talking to your doctor about acromegaly section for a list of questions you could take with you to your visits.