Keeping a note of your medical care can help you in two ways.
First it can save you having to repeat yourself every time you see a new healthcare professional by giving them all your essential information at the start.
Second, it can provide you with a reminder of the tests and treatments you have had and allow you to keep a log of any symptoms or side effects you may have had or are experiencing.
This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.
Keeping a record of the following in one place or document may be useful:
Your name, date of birth, and contact details, including the name and contact details of someone that could be contacted in an emergency.
Information about your acromegaly diagnosis, such as the date it was made, who made the diagnosis, your presenting symptoms and any other information that you think might be important to remember or share.
Keeping a list of the tests you have had, the dates of any scans and any results can be helpful. You may need to ask your doctor or other member of your healthcare team to complete this list.
Ask your doctor or someone in your healthcare team to help you complete a list of treatments you have had or are going to have and note down any doses or timings of medications you are prescribed.
Logging any symptoms or side effects you experience can be important. Try to note the date and time, and severity if you can. Always consult a doctor if you experience any untoward effects, even if you are not sure if they are connected to your treatment.
Write down the names and contact details of your healthcare team, such as your general practitioner (primary care doctor) or nurse, and any specialists you may have seen.
Although not essential, you may like to keep a record of some basic health information such as your height and current weight, any allergies that you may have, and any other conditions that you have, such as diabetes mellitus or joint problems, or others that are not necessarily due to having acromegaly. Keep an up to date list of all your current medications.
Download the Acromunity Medical Details and Treatment Tracker to help you keep track of your medical care for acromegaly. This is something that may be most useful when you are diagnosed and during your initial treatment phase.
Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition
Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend
Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs