This website is intended for an Australian and New Zealand audience who are interested in acromegaly
View your own country's website
This website is intended for an Australian and New Zealand audience who are interested in acromegaly

Why should I keep a record of my medical care?

Richard gives advice for someone newly diagnosed with acromegaly

01:32

Keeping a note of your medical care can help you in two ways.

First it can save you having to repeat yourself every time you see a new healthcare professional by giving them all your essential information at the start.

Second, it can provide you with a reminder of the tests and treatments you have had and allow you to keep a log of any symptoms or side effects you may have had or are experiencing.

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

What information should I note down?

Keeping a record of the following in one place or document may be useful:

Your personal details

Your name, date of birth, and contact details, including the name and contact details of someone that could be contacted in an emergency.

Your acromegaly history

Information about your acromegaly diagnosis, such as the date it was made, who made the diagnosis, your presenting symptoms and any other information that you think might be important to remember or share.

Results of tests and scans

Keeping a list of the tests you have had, the dates of any scans and any results can be helpful. You may need to ask your doctor or other member of your healthcare team to complete this list.

Your treatment plan

Ask your doctor or someone in your healthcare team to help you complete a list of treatments you have had or are going to have and note down any doses or timings of medications you are prescribed.

Your symptoms and side effects

Logging any symptoms or side effects you experience can be important. Try to note the date and time, and severity if you can. Always consult a doctor if you experience any untoward effects, even if you are not sure if they are connected to your treatment.

Details of your healthcare team

Write down the names and contact details of your healthcare team, such as your general practitioner (primary care doctor) or nurse, and any specialists you may have seen.

Your general health

Although not essential, you may like to keep a record of some basic health information such as your height and current weight, any allergies that you may have, and any other conditions that you have, such as diabetes mellitus or joint problems, or others that are not necessarily due to having acromegaly. Keep an up to date list of all your current medications.

Download the Acromunity Medical Details and Treatment Tracker to help you keep track of your medical care for acromegaly. This is something that may be most useful when you are diagnosed and during your initial treatment phase.

Acromunity Medical Details and Treatment Tracker (MS Word)

Acromunity Medical Details and Treatment Tracker (PDF)

Review the resources used to create the content in this section >

Read about practical tips and tools >

Tagged:

Tips and tools

Follow this topic

Save this page for later:

+

Rate this content

No votes yet.
Please wait...

Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

We use cookies to ensure that we give you the best experience on our website. Click here for more information.
Ipsen

Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website supported by Thrivase Pty Ltd.

SOM-AU-000711. Last reviewed: November 2023

Ipsen Pty Ltd. Level 5, 627 Chapel Street, South Yarra, VIC 3141, Australia. ABN 47 095 036 909.