Acromunity: Acromegaly Patient Support Groups

This website is intended for an Australian and New Zealand audience who are interested in acromegaly

Everything you need to know about acromegaly

Learn about acromegaly

What is acromegaly? What causes acromegaly? How common is acromegaly?

Acromegaly symptoms and signs Meet your care team

Diagnosis and testing

Talking with your doctor about acromegaly Medical history and examination Blood tests for acromegaly Imaging techniques

Other tests for acromegaly Understanding test results

Treating acromegaly

Goals of treating acromegaly Surgical treatment of acromegaly Medications used to treat acromegaly

Radiotherapy for acromegaly What to expect from your treatment

Learn how to cope and
live with acromegaly

Information about the emotional, physical and social challenges of living with acromegaly

Adapting to acromegaly Acromegaly and fertility/pregnancy Conditions associated with acromegaly Talking about acromegaly

Helping others to understand acromegaly Working and studying with acromegaly Travelling with acromegaly Keeping track of your medical care

Practical Tips & Tools

Diet and nutrition Keeping fit Sleep and relaxation Preparing for imaging techniques Managing injection side effects Buying clothes and shoes Searching for information about acromegaly Improving low mood

Hear from others
with acromegaly

After getting more information I was calm and said to myself, “OK, I will fight against acromegaly.

Brigitte

View Brigitte's story View all patient stories

Supporting you throughout your journey

View the resources listed here to find more information about acromegaly, including reading answers to some frequently asked questions by others living with acromegaly.

You can also suggest a question if there is something you feel is missing and would help others to read, and find a list of patient support groups for people with acromegaly and other pituitary disorders.

Frequently asked questions (FAQs) Acromegaly patient support groups

What are you looking for?

Get support

Living with acromegaly is not something that you have to do alone. There is always help and support available if needed.

In this section of the Acromunity website you can find a list of patient support groups. You can also find answers to questions people with acromegaly often ask, such as: What causes acromegaly? What are the symptoms of acromegaly? How is acromegaly treated?

Everything you need to know about acromegaly

Learn about acromegaly

Diagnosis and testing

Treating acromegaly

Learn how to cope and
live with acromegaly

Practical Tips & Tools

Hear from others
with acromegaly

After getting more information I was calm and said to myself, “OK, I will fight against acromegaly.

Supporting you throughout your journey

What are you looking for?

Patient support groups

Living with acromegaly

The World Alliance of Pituitary Organisations (WAPO)

Australian Pituitary Foundation

The New Zealand Acromegaly Society

Get support

Explore:

Find the support you need

Learn about acromegaly

Practical tips and tools

Living with acromegaly

Everything you need to know about acromegaly

Learn about acromegaly

Diagnosis and testing

Treating acromegaly

Learn how to cope and live with acromegaly

Practical Tips & Tools

Hear from others with acromegaly

After getting more information I was calm and said to myself, “OK, I will fight against acromegaly.

Supporting you throughout your journey

What are you looking for?

Patient support groups

Living with acromegaly

The World Alliance of Pituitary Organisations (WAPO)

Australian Pituitary Foundation

The New Zealand Acromegaly Society

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Get support

Explore:

Find the support you need

Learn about acromegaly

Practical tips and tools

Living with acromegaly

Learn how to cope and
live with acromegaly

Hear from others
with acromegaly