Information about the emotional, physical and social challenges of living with acromegaly
View the resources listed here to find more information about acromegaly, including reading answers to some frequently asked questions by others living with acromegaly.
You can also suggest a question if there is something you feel is missing and would help others to read, and find a list of patient support groups for people with acromegaly and other pituitary disorders.
Although discovering that you have acromegaly and living with the condition might feel quite daunting at times, you are certainly not alone.
Read or watch some real Patient Stories here to find out some of the ways in which other people are living with acromegaly.
What I would say is take time, read the information, let yourself feel all the emotions.
After getting more information I was calm and said to myself, “OK, I will fight against acromegaly.
If he would have told me I think you have acromegaly I would have asked him what that is.
You have to face up to having a life-long condition and having negative feelings solves nothing
Although the diagnosis impacts your morale, it is important to set yourself goals in everyday life.
Do you have any practical tips that you think other people living with acromegaly might benefit from? If so, please send us your tips via this form. Once submitted your suggestion will be reviewed by our expert advisors and considered for inclusion when this site is next updated.
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