This website is intended for an Australian and New Zealand audience who are interested in acromegaly
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This website is intended for an Australian and New Zealand audience who are interested in acromegaly

Helena talks about taking time to understand acromegaly.

00:55

What is your advice for someone recently diagnosed with acromegaly?

“Let yourself feel all the emotions, don’t feel guilty about being overwhelmed or lost”

View Helena’s story >

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Helena talks about staying positive.

00:40

What would be your advice for managing acromegaly?

“You can live a normal life, […] but it will take time, and you have to […] give yourself that time”

View Helena’s story >

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Richard talks about adapting to a diagnosis of acromegaly

01:17

What is your advice on coming to terms with an acromegaly diagnosis?

“My advice is to take time for yourself, for the diagnosis to settle in”

View Richard’s story >

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique. You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Learning to cope with your diagnosis

Experiencing physical and emotional changes due to acromegaly may make you feel tired, in pain, or just awkward and different to others around you.

Although receiving a diagnosis of acromegaly can provide some relief, particularly if you have been unwell for some years before the diagnosis was made, you may still feel worried about what lies ahead.

Remember that with treatment you should start to feel better. Also, learning more about the condition can make you feel more in control of your life again.

It is important that you speak to your healthcare team if you feel stressed or worried about your diagnosis.  Your healthcare team can answer any questions you may have and can arrange for counselling if you think this will be helpful.

“When I look back I did not realise the seriousness of it initially. It can be overwhelming”

Maria, living with acromegaly

How can I help myself?

Many people find it useful to know as much as they can about their condition and its management.

Contact your local patient support group. They can put you in touch with other people in a similar situation and can also help you with practical advice and information on issues such as:

  • obtaining life and other types of insurance (e.g travel insurance)
  • your entitlement to a concession for your prescriptions
  • employment and taking time off work
  • planning for the future
  • travelling with a long-term condition.

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Living with acromegaly

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Find the support you need

Practical tips and tools

Read practical tips to help make your life with acromegaly easier, including tips from others living with the condition

Go to tips and tools

Support groups

Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

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Ipsen

Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website supported by Thrivase Pty Ltd.

SOM-AU-000711. Last reviewed: November 2023

Ipsen Pty Ltd. Level 5, 627 Chapel Street, South Yarra, VIC 3141, Australia. ABN 47 095 036 909.