This website is intended for an Australian and New Zealand audience who are interested in acromegaly
This website is intended for an Australian and New Zealand audience who are interested in acromegaly


You have to face up to having a life-long condition and having negative feelings solves nothing

This patient testimonial reflects only this person’s opinions about their own care. Each person’s case is unique.  You should always consult a doctor for information and advice about the diagnosis and treatment of acromegaly.

Please note that all treatments may have side effects. Ask your doctor about side effects when considering a given treatment.

Before my diagnosis I had several strange experiences, which at the time I put down to stress, but that I now know were probably due to my acromegaly.

Looking back I also noticed that the shape of my face was changing very slowly. My dentist was saying that my teeth alignment was changing although he did not raise it as a problem.

It was not until I started getting bad headaches that I realised there was really something not right. I did a bit of research online and asked my doctor if he could do a blood test as I thought I had a pituitary tumour.

After blood tests confirmed this, it really only hit me that I had a pituitary tumour after I was referred to an endocrinologist at the hospital and felt very conscious that I had a disorder. Up until then I had not been really worried.

After diagnosis, I entered into quite a dark period. I suddenly started focussing on the fact I had a tumour on my pituitary gland, it’s in my head. Lots of worry and questions about the future. Luckily I had friends and family around me to try to keep me grounded.

Acromegaly has affected my self-image and what I see in the mirror, although it has got better. You have to face up to having a life-long condition and having negative feelings solves nothing. There are options and while you have to live with it you have to try to remember to be kind to yourself. The people that love you for who you are will carry on loving you for who you are.

I had surgery to remove the pituitary tumour but this did not completely bring my growth hormone levels down to a normal range so I was put on medication.

I view my appointments at the hospital positively as I am receiving regular checks on my health overall and talk about my concerns. I am probably more in touch with my health than most people out there because I know what is going on and everything is checked.

Since I’ve been on treatment I’ve completely changed in lots of ways. My wellbeing has increased, I have got more energy and I have got back to an active lifestyle.


Patient stories

Follow this topic

Rate this content

No votes yet.
Please wait...

Find the support you need

Living with acromegaly

Information about the emotional, physical and social challenges of living with acromegaly

Living with acromegaly

Support groups

Find an acromegaly patient support group in your country to find out about local activities and events that you may be able to attend

Find Patient Support Groups

Learn about acromegaly

Learn about acromegaly including what causes this slowly evolving condition, and the early symptoms and signs

Learn about acromegaly

We use cookies to ensure that we give you the best experience on our website. Click here for more information.

Please always consult a healthcare professional if you require healthcare advice or if you have any specific concerns regarding your acromegaly, its treatment or side effects. The information provided here is not intended to replace professional advice. This website has been developed by Ipsen in collaboration with those living with acromegaly and the healthcare professionals who care for them. Ipsen would like to thank everyone for their valuable insights and stories. All names used on this website are not necessarily real names. Visit our website for more information about us, or to contact us directly. Website supported by Thrivase Pty Ltd.

SOM-AU-000711. Last reviewed: November 2023

Ipsen Pty Ltd. Level 5, 627 Chapel Street, South Yarra, VIC 3141, Australia. ABN 47 095 036 909.